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Chapter 15
The
Warriors
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Any account of the combat between
managed care companies and community leaders is of necessity
incomplete. Many unsung warriors have endeavored daily to
wrestle their right to health from the entrepreneurs that
are denying access to medical care.
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Many advocacy groups have risen to
the challenge from the very beginning. By stressing the need
for excellence in diagnosis and treatment, the National
Association for Research on Schizophrenia and Affective
Disorders (NARSAD), the Depressive-Manic Depressive
Association (DMDA), the American Anxiety Disorders
Association (AADA), and several other advocacy groups have
come to the very front of the battle.
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The National Alliance for the
Mentally Ill (NAMI) has been an ever present, ever dynamic
force, probing, pulling, pushing, demanding, and never
retreating. NAMI has often been a major engineer of
efforts at winning seemingly impossible victories. When
legislative action on parity coverage for the mentally ill
first started to become a reality, three senators whose
families had suffered because of mental illness carried the
day. Behind them was the might of NAMI and its
followers. This is one of many examples:
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The National Mental Health
Association (NMHA) has been a constant source of innovative
health concepts, ideas for new programs, strength in the
daily battles, and new strategies in the midst of changing
centers of controversy. By being always in touch with the
public, with legislators and with community leaders, NMHA
has often managed to convert nuclei of conflict into areas
of progress.
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The academic community, hardest hit
in several ways, has come to the front after realizing that
managed care practices may destroy the country's system
of medical graduate education. The reason is that since
Medicare was enacted in l965, it has included support for
teaching hospitals. This support, thanks to the managed
care companies, is now being eroded. After 1990, growth
slowed markedly in medical schools where managed care had
penetrated. Much time is now being used for treating large
numbers of patients for lower fees. The same time is sorely
needed for education and research.
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During the managed care years,
private insurers have constantly reduced their payment for
hospital care in university centers, in part by not paying
Medicare subsidies for medical graduate education (if the
Medicare patient pays through the HMO, the Medicare subsidy
money for education stays with the HMO). Medicare payments
have not yet followed the free fall that has occurred in
payment by the private sector, so that today legislators who
want to reduce Medicare payments suspect that Medicare is
actually subsidizing reduced payments by the "for profit"
HMOs. In other words, if HMO payments stay below cost,
Medicare payments have to stay above cost in order to
prevent the collapse of the teaching
hospitals.
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Physicians in all specialties have
joined the academic groups, the community at large and an
increasing number of legislators in fighting to prevent the
eventual final victory of the managed care industry: closing
the teaching hospitals so that the country is rendered
unable to produce new physicians.
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Families USA, a consumer
organization based in Washington, D.C., has helped greatly
in understanding the effects of managed care decisions and
policies. It has published the compensation of the top 25
highest paid HMO executives for l996. The salaries of the
first 10 ranged from more than 5 million to more than 29
million a year. Some of the companies were in financial
trouble because of their policies.
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Family Voices is a national
grassroots network of more than 12,000 families and friends
concerned about children with special health needs. This
organization has conducted surveys that help portray the
deficiencies of managed care as opposed to other systems. A
recent Managed Care Survey in Atlanta, Denver, Des Moines
and Seattle left no doubt that "families were twice as
likely to be highly satisfied in non-managed care plans as
in managed care plans with aspects of service delivery of
greatest importance to children with special needs".
This came as no surprise to most of those who have required
medical services in the recent past.
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Karen Shore, Ph.D. took the cause
of our patients as her own, and has been battling the
managed care hordes with ever fresh ideas and tremendous
energy. We asked her how she got to a position of leadership
in the anti-managed care movement.
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Here is her answer:
I think that I understood
the issues of power, control, and corporate 'imperialism'
and the effects they would have on health care, on
patients, on the professions, and on the education and
training of new clinicians. I think I was sensitive to
these issues because of my being a woman and a Jew who
grew up right after WWII with an awareness of the
Holocaust and the disempowerment of women and
minorities.
I am well aware that those
that love power, control, and money often try to get as
much of them as they can at the expense of others,
without really caring who they hurt. My first
reaction when I heard about managed care was to re-read
George Orwell's '1984' and Aldous Huxley's 'Brave New
World', for I could see that this was a takeover of
control of all health care by aggressive predators who
were in it for their own financial gain and needs for
power. I wrote about the similarities between the
managed care industry and totalitarian regimes, and the
effects of industrialization on the human psyche, gained
from my interest in Erich Fromm's
writings.
I also knew that the
professional associations were lagging behind my thinking
and were more conservative than I felt the need to be. I
knew I needed to form an organization through which I and
others like me could speak out without mincing words or
worrying who we were going to make angry. I did make many
people angry and got called a lot of bad names for the
first few years. That doesn't happen anymore,
though...quite the opposite now. While we were partly
pushing and opposing the professional organizations at
first, as they have moved into more opposition to managed
care, we are now working more cooperatively with the
professions.
We formed the National
Coalition of Mental Health Professionals and Consumers,
Inc. in November of 1992, right after Clinton, a
managed care supporter, was elected. We knew we needed to
be interdisciplinary and to involve consumers to be able
to play a significant role. I have spent a lot of effort
building the necessary liaisons, for it is the only way.
With Rescue Health Care Day (RHCD), April 1, 2000, we
are now building liaisons with organizations from all
fields of health care, not just mental health. I knew
from the beginning that a good mental health package
could not exist inside a bad health care system. We need
to address all of health care.
RHCD will be a day for the
nation to express a vote of 'No Confidence' in managed
care and corporate health care, to demand alternative
systems that will bring quality and consumer freedom, and
to teach and learn about the possible alternatives to
managed care. Over 100 organizations support
RHCD.
Our goals have been to expose,
regulate and replace managed care. I knew from the
beginning that managed care could not be fixed due to its
inherent conflict of interest, because of greed on the
part of the managed care organizations, because of their
lack of concern for others, and because of their ability
to control the flow of money, making patients and
clinicians depend on them. Economic dependence is the
way of tyrants.
We have been successful exposing
the problems of managed care to the public through the
media. The NY Times published, in February of l993, my
letter entitled 'The Trauma of Managed Mental Health
Care'. This brought us over 150 calls from all over the
country and launched us into a position of visibility
with the media, which had not covered mental health much
before. Since then, I and members of the Coalition have
been quoted in the NY Times, the Wall Street Journal,
Business Week, Newsweek, and dozens of other newspapers
and magazines, seen on TV (60 Minutes, Nightline, all
major networks) and interviewed on numerous radio
programs. I would estimate that 75% of everything that
has appeared in the media about managed mental health
care involved the Coalition
We have been very involved in
lobbying efforts and helped our members do this task
well.
I really want to change the
country. I became a psychologist and a psychoanalyst
because I know that there are a lot of people in pain in
this nation and that many of us have the ability to heal
that pain. I don't want anyone to impede my desire and
ability to do that. Further, I truly want to see
America be a physically and mentally/emotionally healthy
nation. We can reduce violence, depression, anxiety,
and many destructive acts against self, other people,
families, communities, and society at large. This
destruction has to do with emotional and physical pain.
It is an outrage that healing pain should be twisted into
a game of Monopoly for corporate executives and
shareholders.
I am no longer considered a
radical. My belief has been: if you think you are right
and keep on saying what you believe, and - if you really
are right - eventually you go from being a radical to
bringing others along to being the voice of the
mainstream.
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Ivan Miller, Ph.D. has given
extraordinary scientific support to the critics of managed
care. A prolific writer, Dr. Miller has analyzed the
internal flaws in managed care thinking and exposed the
ethical aberrations of systems based on denial of care. He
is completing an analysis of quality issues that will add
much weight to our claims that managed care is a flawed and
senseless idea.
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Dr. Miller has also
distinguished himself as a consumer advocate who has
enhanced communications between professionals and
patients. He is the founder and President of the Boulder
Psychotherapists Guild. The Guild's Directory of Therapists
offers free community presentations and operates a referral
line. It is the largest and longest lasting
interdisciplinary organization promoting individual
responsibility for psychotherapy. Dr. Miller gives advice
through the Mental Health Insurance Action Line. This
service also offers The Mental Health Consumer Protection
Manual: A guide to Solving Problems with Insurance and
Managed Care
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Dr. Miller's research has
demonstrated that "evidence" supporting time-limited therapy
has been mostly based on misquoted and misinformed
re-evaluation of minimal data.
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Bryan L. Welch, J.D., Ph.D., an
excellent clinical psychologist turned into an equally
excellent anti-managed care lawyer, has spent several years
defending managed care victims all over the country.
Testimony to his highly successful challenge is given by the
companies themselves, who inevitably insist on settlement
clauses that prevent disclosure of the claims and the
settlement. In 1983, while practicing psychology in Chapel
Hill, North Carolina, he recognized the impending damage to
mental health. His writings and speeches since then were an
early warning to the public about the devastating impact
managed care would have on mental health services. Starting
in 1985, Dr. Welch became instrumental in establishing an
effective anti-managed care advocacy in the American
Psychological Association. In 1994, Dr. Welch left the
American Psychological Association, and established his own
law firm focusing on litigation against the managed care
industry on behalf of patients and doctors alike who have
been victimized by managed care.
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Joseph R. Sahid, a corporate
lawyer with an extensive and successful background in class
action suits is at the center of an effort that represents
the feelings of most mental health professionals: he
will demonstrate in court that nine mental health managed
care companies have conspired against mental health
professionals. This conspiracy has severely impaired our
ability to provide adequate care to our patients. Discovery
in this suit is likely to provide extensive evidence about
the inner works of a nefarious plot..
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Mr. Sahid is a well known litigator
with nearly 30 years experience handling protracted, complex
litigation. He has recently participated in some of the most
difficult antitrust class action litigation taking place in
the U.S
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n the 1980s Mr. Sahid represented
five domestic steel companies against foreign steel
manufacturers, allowing them to compete more
effectively.
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Mr. Sahid led teams of up to 100
professionals defending IBM against antitrust charges,
including those brought by competitors, the U.S. Government,
and the European Economic Community.
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